Shannon Keizer

Five years ago, if you were to ask what brings me passion, I would have said “travel and adventure”. But now that I’ve reached the wise, old age of thirty, my answer is quite different. Although those things are still important, what I now find most thrilling is making a difference in lives. It’s about […]

CRF Awards $2,617,711 in New Grants in 2019

We are pleased to announce that CRF recently approved three new research grants totaling $856,488. The grants were awarded to Dr. Pierre Courtoy at de Duve Institute, Dr. Robert Mak at UC San Diego and Dr. Reza Seyedsadjadi at Massachusetts General Hospital. In 2019 CRF awarded a total of 10 new grants totaling $2,617,711 million. The […]

Thank You for Giving!

Your donations mean a brighter future for our children and adults with cystinosis. Together we are turning dreaming into doing!  With the generosity and support of our Facebook friends and our CRF community we raised $26,675 for cystinosis research.  Thanks to your commitment, we are funding cutting edge research that is leading to new treatments and a […]